Assessing disease experience across the life span for individuals with osteogenesis imperfecta: Challenges and opportunities for patient-reported outcomes (PROs) measurement: A pilot study

Laura L. Tosi, Marianne K. Floor, Christina M. Dollar, Austin P. Gillies, Brendan Lee, Sandesh C.S. Nagamani, Frank Rauch, Francis Glorieux, Jean Marc Retrouvey, Paul Esposito, Eric Rush, Michael Bober, David Eyre, Danielle Gomez, Gerald Harris, Mahim Jain, Deborah Krakow, Eric Orwoll, Cathleen Raggio, Peter SmithTracy S. Hart, David D. Cuthbertson, V. Reid Sutton, Jeffrey P. Krischer

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