TY - JOUR
T1 - Experiences of Women With Disabilities in Accessing and Receiving Contraceptive Care
AU - Horner-Johnson, Willi
AU - Klein, Krystal A.
AU - Campbell, Jan
AU - Guise, Jeanne Marie
N1 - Funding Information:
Supported in part by grant number K12HS022981 from the Agency for Healthcare Research and Quality (Jeanne-Marie Guise, principal investigator) and by grant number UL1TR000128 from the National Center for Advancing Translational Sciences , National Institutes of Health. The content is solely the responsibility of the authors and does not necessarily represent the official views of the Agency for Healthcare Research and Quality or the National Institutes of Health. The funding agencies had no role in the conduct of the research or preparation of the manuscript for submission.
Publisher Copyright:
© 2021 AWHONN, the Association of Women's Health, Obstetric and Neonatal Nurses
PY - 2021/11
Y1 - 2021/11
N2 - Objective: To conduct an initial exploration of the experiences of women with different types of disability when they attempt to obtain contraceptive care. Design: Multiple-category focus group design. Setting: Multiple community sites. Participants: Seventeen women with disabilities of reproductive age. Methods: We purposively sampled women with different types of disability and conducted four focus groups organized by disability type: physical disability, intellectual and developmental disability, blind or low vision, and deaf or hard of hearing. We used a semistructured focus group guide to elicit participants’ positive and negative experiences with contraceptive care. We analyzed focus group transcripts using content analysis. Results: Participants identified challenges to obtaining high-quality contraceptive care in three main thematic areas: Accessibility and Accommodations, Clinician Attitudes, and Health Insurance. Participants with physical disabilities encountered inaccessible clinic rooms and examination tables, and those with sensory disabilities or intellectual and developmental disability described inaccessible clinic forms and information. Participants from multiple disability groups described negative attitudes of health care providers and health insurance limitations. Conclusion: As described by our participants, the processes and infrastructure of contraceptive care were based on an assumption of an able-bodied norm. Reliance on such a norm, for example, offering a paper pamphlet to a blind woman, is not helpful and can be harmful to women with disabilities. Increased attention to the reproductive health care needs of women with disabilities is important for improving health care equity and quality.
AB - Objective: To conduct an initial exploration of the experiences of women with different types of disability when they attempt to obtain contraceptive care. Design: Multiple-category focus group design. Setting: Multiple community sites. Participants: Seventeen women with disabilities of reproductive age. Methods: We purposively sampled women with different types of disability and conducted four focus groups organized by disability type: physical disability, intellectual and developmental disability, blind or low vision, and deaf or hard of hearing. We used a semistructured focus group guide to elicit participants’ positive and negative experiences with contraceptive care. We analyzed focus group transcripts using content analysis. Results: Participants identified challenges to obtaining high-quality contraceptive care in three main thematic areas: Accessibility and Accommodations, Clinician Attitudes, and Health Insurance. Participants with physical disabilities encountered inaccessible clinic rooms and examination tables, and those with sensory disabilities or intellectual and developmental disability described inaccessible clinic forms and information. Participants from multiple disability groups described negative attitudes of health care providers and health insurance limitations. Conclusion: As described by our participants, the processes and infrastructure of contraceptive care were based on an assumption of an able-bodied norm. Reliance on such a norm, for example, offering a paper pamphlet to a blind woman, is not helpful and can be harmful to women with disabilities. Increased attention to the reproductive health care needs of women with disabilities is important for improving health care equity and quality.
KW - communication barriers
KW - disabled persons
KW - family planning services
KW - female contraception
KW - focus groups
KW - physical barriers
KW - qualitative
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U2 - 10.1016/j.jogn.2021.07.005
DO - 10.1016/j.jogn.2021.07.005
M3 - Article
C2 - 34389287
AN - SCOPUS:85116794536
SN - 0884-2175
VL - 50
SP - 732
EP - 741
JO - JOGNN - Journal of Obstetric, Gynecologic, and Neonatal Nursing
JF - JOGNN - Journal of Obstetric, Gynecologic, and Neonatal Nursing
IS - 6
ER -