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Facing chronic illness: The family support model and its benefits

  • Linda Boise
  • , Bobby Heagerty
  • , Leah Eskenazi

Research output: Contribution to journalArticlepeer-review

Abstract

With the aging of the population and the evolving health care system, it is more important than ever before that individuals be actively involved in selfcare activities and that individuals and families receive education and support to help them cope with chronic illness. This article describes a model family support program which operates within a hospital setting to provide information, education, support, and respite services. This model is based on an extensive research base which underscores the value of this model both for the individuals and families involved and for the health care system.

Original languageEnglish (US)
Pages (from-to)75-84
Number of pages10
JournalPatient Education and Counseling
Volume27
Issue number1
DOIs
StatePublished - Jan 1996
Externally publishedYes

Funding

Other groups also grew out of other educational series - Alzheimers, stroke, multiple sclerosis. The need for addressing the needs of care-givers soon became apparent in working with these chronic disease populations, and the Care-giver Education Program was developed in 1983. A survey of care-givers conducted by the center in 1982 indicated that ‘a break now and then’ was the most wished-for service. A subsequent grant from the Meyer Memorial Trust helped to initiate the Care-giver Respite Program and to develop a Family Resource Center and information/referral line. A series of eleven booklets have been written and are distributed nationally to help organ~ations develop support programs, such as in-home respite, support groups, and special programs for care-givers who also work outside the home.

Funders
Meyer Memorial Trust

    Keywords

    • Aging
    • Family support
    • Self care

    ASJC Scopus subject areas

    • General Medicine

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