TY - JOUR
T1 - Lessons learned from developing a patient engagement panel
T2 - An OCHIN report
AU - Arkind, Jill
AU - Likumahuwa-Ackman, Sonja
AU - Warren, Nate
AU - Dickerson, Kay
AU - Robbins, Lynn
AU - Norman, Kathy
AU - DeVoe, Jennifer E.
PY - 2015/9/1
Y1 - 2015/9/1
N2 - There is renewed interest in patient engagement in clinical and research settings, creating a need for documenting and publishing lessons learned from efforts to meaningfully engage patients. This article describes early lessons learned from the development of OCHINs Patient Engagement Panel (PEP). OCHIN supports a national network of more than 300 community health centers (CHCs) and other primary care settings that serve over 1.5 million patients annually across nearly 20 states. The PEP was conceived in 2009 to harness the CHC tradition of patient engagement in this new era of patient-centered outcomes research and to ensure that patients were engaged throughout the life cycle of our research projects, from conception to dissemination. Developed by clinicians and researchers within our practice-based research network, recruitment of patients to serve as PEP members began in early 2012. The PEP currently has a membership of 18 patients from 3 states. Over the past 24 months, the PEP has been involved with 12 projects. We describe developing the PEP and challenges and lessons learned (eg, recruitment, funding model, creating value for patient partners, compensation). These lessons learned are relevant not only for research but also for patient engagement in quality improvement efforts and other clinical initiatives.
AB - There is renewed interest in patient engagement in clinical and research settings, creating a need for documenting and publishing lessons learned from efforts to meaningfully engage patients. This article describes early lessons learned from the development of OCHINs Patient Engagement Panel (PEP). OCHIN supports a national network of more than 300 community health centers (CHCs) and other primary care settings that serve over 1.5 million patients annually across nearly 20 states. The PEP was conceived in 2009 to harness the CHC tradition of patient engagement in this new era of patient-centered outcomes research and to ensure that patients were engaged throughout the life cycle of our research projects, from conception to dissemination. Developed by clinicians and researchers within our practice-based research network, recruitment of patients to serve as PEP members began in early 2012. The PEP currently has a membership of 18 patients from 3 states. Over the past 24 months, the PEP has been involved with 12 projects. We describe developing the PEP and challenges and lessons learned (eg, recruitment, funding model, creating value for patient partners, compensation). These lessons learned are relevant not only for research but also for patient engagement in quality improvement efforts and other clinical initiatives.
KW - Patient Engagement
KW - Patient-Centered Outcomes Research
KW - Populations, Underserved
KW - Primary Health Care
UR - http://www.scopus.com/inward/record.url?scp=84941195197&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84941195197&partnerID=8YFLogxK
U2 - 10.3122/jabfm.2015.05.150009
DO - 10.3122/jabfm.2015.05.150009
M3 - Article
C2 - 26355135
AN - SCOPUS:84941195197
SN - 1557-2625
VL - 28
SP - 632
EP - 638
JO - Journal of the American Board of Family Medicine
JF - Journal of the American Board of Family Medicine
IS - 5
ER -