TY - JOUR
T1 - Parents' Concerns Are Associated with Early Intervention Evaluation and Eligibility Outcomes
AU - Solgi, Mohadeseh
AU - Feryn, Alicia
AU - Chavez, Alison E.
AU - Wilson, Laura
AU - King, Margaret
AU - Scholz, Julie
AU - Fombonne, Eric
AU - Zuckerman, Katharine E.
N1 - Funding Information:
Work reported in this publication was supported by the National Institutes of Health Common Fund and Office of Scientific Workforce Diversity under 3 linked awards RL5GM118963, TL4GM118965, and UL1GM118964, administered by the National Institute of General Medical Sciences. The work is solely the responsibility of the authors and does not necessarily represent the official view of the National Institutes of Health. The REAL-START project was funded by Autism Speaks Early Access to Care Grant 8932. Dr. Zuckerman's effort was supported by 1K23MH095828 from the National Institute of Mental Health. Statistical support was provided by the Oregon Clinical and Translational Research Institute (National Center for Advancing Translational Sciences of the National Institutes of Health UL1TR0002369). The authors would also like to acknowledge Colleen Reuland and Katie Unger for their collaboration with the original study and Katrina Ramsey for statistical advisement.
Publisher Copyright:
© 2022 Lippincott Williams and Wilkins. All rights reserved.
PY - 2022/4/1
Y1 - 2022/4/1
N2 - ABSTRACT:Objective:To test the association of parents' concerns with early intervention (EI) developmental services outcomes including evaluation, eligibility, and enrollment in services.Method:We collected survey data on parents' concerns and EI service use data from a sample of 428 children referred to EI from 2016 to 2018 in 6 Oregon primary care clinics serving lower-income families as part of a developmental and autism spectrum disorder screening intervention. We assessed EI service use trajectories and associations of the presence of parent concern, age of child at the time of parents' concerns, number of concerns, and type of provider concern, with EI evaluation, EI eligibility, and enrollment in EI services, using bivariate testing and multivariable logistic regression.Results:Only 22.9% of children referred to EI were enrolled in services 6 months later. Children whose parents had developmental and/or behavioral concerns were more likely to receive an EI evaluation and were also more likely to be eligible for services, compared with children whose parents had no concerns. There was no association between age, number of concerns, and type of concern with EI evaluation, eligibility, or services enrollment.Conclusion:Although only a minority of children referred to EI enrolled in services, the presence of parent concern is strongly associated with EI services evaluation and eligibility outcomes. Study results suggest that providers should assess the presence of parent concern when deciding on EI referrals and provide more support to parents who are not concerned at all.
AB - ABSTRACT:Objective:To test the association of parents' concerns with early intervention (EI) developmental services outcomes including evaluation, eligibility, and enrollment in services.Method:We collected survey data on parents' concerns and EI service use data from a sample of 428 children referred to EI from 2016 to 2018 in 6 Oregon primary care clinics serving lower-income families as part of a developmental and autism spectrum disorder screening intervention. We assessed EI service use trajectories and associations of the presence of parent concern, age of child at the time of parents' concerns, number of concerns, and type of provider concern, with EI evaluation, EI eligibility, and enrollment in EI services, using bivariate testing and multivariable logistic regression.Results:Only 22.9% of children referred to EI were enrolled in services 6 months later. Children whose parents had developmental and/or behavioral concerns were more likely to receive an EI evaluation and were also more likely to be eligible for services, compared with children whose parents had no concerns. There was no association between age, number of concerns, and type of concern with EI evaluation, eligibility, or services enrollment.Conclusion:Although only a minority of children referred to EI enrolled in services, the presence of parent concern is strongly associated with EI services evaluation and eligibility outcomes. Study results suggest that providers should assess the presence of parent concern when deciding on EI referrals and provide more support to parents who are not concerned at all.
KW - developmental delays
KW - early identification
KW - parent concerns
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U2 - 10.1097/DBP.0000000000001003
DO - 10.1097/DBP.0000000000001003
M3 - Article
C2 - 35703857
AN - SCOPUS:85132131857
SN - 0196-206X
VL - 43
SP - E145-E152
JO - Journal of Developmental and Behavioral Pediatrics
JF - Journal of Developmental and Behavioral Pediatrics
IS - 3
ER -