Participant satisfaction with dementia prevention research: Results from Home-Based Assessment trial

Mary Sano; Susan Egelko; Carolyn W. Zhu; Clara Li; Michael C. Donohue; Steven Ferris; Jeffrey Kaye; James C. Mundt; Chung Kai Sun; Paul S. Aisen; Howard H. Feldman

doi:10.1016/j.jalz.2018.05.016

Participant satisfaction with dementia prevention research: Results from Home-Based Assessment trial

Mary Sano, Susan Egelko, Carolyn W. Zhu, Clara Li, Michael C. Donohue, Steven Ferris, Jeffrey Kaye, James C. Mundt, Chung Kai Sun, Paul S. Aisen, Howard H. Feldman

Neurology

Research output: Contribution to journal › Article › peer-review

10 Scopus citations

Abstract

Introduction: Little is known about factors affecting motivation and satisfaction of participants in dementia prevention trials. Methods: A Research Satisfaction Survey was administered to 422 nondemented older adults who participated in the Home-Based Assessment trial. Results: Overall satisfaction was high, with means of all individual items near to above a value of 3 on a scale from 1 (worst) to 4 (best). Greater satisfaction was associated with staff-administered interviews versus automated technologies. The most liked aspects of research participation were volunteerism, opportunity to challenge and improve mental function, and positive interactions with staff. The least liked aspect was repetitiveness of the assessments. Participants requested more contact with staff and other older adults and more feedback on performance. Discussion: Older adults' participation in research was primarily motivated by altruism. Methodologies that facilitate human contact, encourage feedback and novelty of tasks should be incorporated into future trial design.

Original language	English (US)
Pages (from-to)	1397-1405
Number of pages	9
Journal	Alzheimer's and Dementia
Volume	14
Issue number	11
DOIs	https://doi.org/10.1016/j.jalz.2018.05.016
State	Published - Nov 2018

Keywords

Clinical Trial
Dementia prevention
Home-based assessment
Research satisfaction
Technology

ASJC Scopus subject areas

Epidemiology
Health Policy
Developmental Neuroscience
Clinical Neurology
Geriatrics and Gerontology
Psychiatry and Mental health
Cellular and Molecular Neuroscience

Access to Document

10.1016/j.jalz.2018.05.016

Cite this

@article{1e189fe4f8254ed6adb5294dd90694ca,

title = "Participant satisfaction with dementia prevention research: Results from Home-Based Assessment trial",

abstract = "Introduction: Little is known about factors affecting motivation and satisfaction of participants in dementia prevention trials. Methods: A Research Satisfaction Survey was administered to 422 nondemented older adults who participated in the Home-Based Assessment trial. Results: Overall satisfaction was high, with means of all individual items near to above a value of 3 on a scale from 1 (worst) to 4 (best). Greater satisfaction was associated with staff-administered interviews versus automated technologies. The most liked aspects of research participation were volunteerism, opportunity to challenge and improve mental function, and positive interactions with staff. The least liked aspect was repetitiveness of the assessments. Participants requested more contact with staff and other older adults and more feedback on performance. Discussion: Older adults' participation in research was primarily motivated by altruism. Methodologies that facilitate human contact, encourage feedback and novelty of tasks should be incorporated into future trial design.",

keywords = "Clinical Trial, Dementia prevention, Home-based assessment, Research satisfaction, Technology",

author = "Mary Sano and Susan Egelko and Zhu, {Carolyn W.} and Clara Li and Donohue, {Michael C.} and Steven Ferris and Jeffrey Kaye and Mundt, {James C.} and Sun, {Chung Kai} and Aisen, {Paul S.} and Feldman, {Howard H.}",

note = "Funding Information: Funding: This work was supported by grants U01 AG10483 and P50AG005138 from the National Institute of Health /National Institute on Aging. M.S. and C.W.Z. are also supported by the Department of Veterans Affairs, Veterans Health Administration. The views expressed in this article are those of the authors and do not necessarily represent the views of the Department of Veterans Affairs. Funding Information: Funding: This work was supported by grants U01 AG10483 and P50AG005138 from the National Institute of Health/National Institute on Aging. M.S. and C.W.Z. are also supported by the Department of Veterans Affairs, Veterans Health Administration. The views expressed in this article are those of the authors and do not necessarily represent the views of the Department of Veterans Affairs. Publisher Copyright: {\textcopyright} 2018 the Alzheimer's Association",

year = "2018",

month = nov,

doi = "10.1016/j.jalz.2018.05.016",

language = "English (US)",

volume = "14",

pages = "1397--1405",

journal = "Alzheimer's and Dementia",

issn = "1552-5260",

publisher = "Elsevier Inc.",

number = "11",

}

TY - JOUR

T1 - Participant satisfaction with dementia prevention research

T2 - Results from Home-Based Assessment trial

AU - Sano, Mary

AU - Egelko, Susan

AU - Zhu, Carolyn W.

AU - Li, Clara

AU - Donohue, Michael C.

AU - Ferris, Steven

AU - Kaye, Jeffrey

AU - Mundt, James C.

AU - Sun, Chung Kai

AU - Aisen, Paul S.

AU - Feldman, Howard H.

N1 - Funding Information: Funding: This work was supported by grants U01 AG10483 and P50AG005138 from the National Institute of Health /National Institute on Aging. M.S. and C.W.Z. are also supported by the Department of Veterans Affairs, Veterans Health Administration. The views expressed in this article are those of the authors and do not necessarily represent the views of the Department of Veterans Affairs. Funding Information: Funding: This work was supported by grants U01 AG10483 and P50AG005138 from the National Institute of Health/National Institute on Aging. M.S. and C.W.Z. are also supported by the Department of Veterans Affairs, Veterans Health Administration. The views expressed in this article are those of the authors and do not necessarily represent the views of the Department of Veterans Affairs. Publisher Copyright: © 2018 the Alzheimer's Association

PY - 2018/11

Y1 - 2018/11

N2 - Introduction: Little is known about factors affecting motivation and satisfaction of participants in dementia prevention trials. Methods: A Research Satisfaction Survey was administered to 422 nondemented older adults who participated in the Home-Based Assessment trial. Results: Overall satisfaction was high, with means of all individual items near to above a value of 3 on a scale from 1 (worst) to 4 (best). Greater satisfaction was associated with staff-administered interviews versus automated technologies. The most liked aspects of research participation were volunteerism, opportunity to challenge and improve mental function, and positive interactions with staff. The least liked aspect was repetitiveness of the assessments. Participants requested more contact with staff and other older adults and more feedback on performance. Discussion: Older adults' participation in research was primarily motivated by altruism. Methodologies that facilitate human contact, encourage feedback and novelty of tasks should be incorporated into future trial design.

AB - Introduction: Little is known about factors affecting motivation and satisfaction of participants in dementia prevention trials. Methods: A Research Satisfaction Survey was administered to 422 nondemented older adults who participated in the Home-Based Assessment trial. Results: Overall satisfaction was high, with means of all individual items near to above a value of 3 on a scale from 1 (worst) to 4 (best). Greater satisfaction was associated with staff-administered interviews versus automated technologies. The most liked aspects of research participation were volunteerism, opportunity to challenge and improve mental function, and positive interactions with staff. The least liked aspect was repetitiveness of the assessments. Participants requested more contact with staff and other older adults and more feedback on performance. Discussion: Older adults' participation in research was primarily motivated by altruism. Methodologies that facilitate human contact, encourage feedback and novelty of tasks should be incorporated into future trial design.

KW - Clinical Trial

KW - Dementia prevention

KW - Home-based assessment

KW - Research satisfaction

KW - Technology

UR - http://www.scopus.com/inward/record.url?scp=85056325256&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85056325256&partnerID=8YFLogxK

U2 - 10.1016/j.jalz.2018.05.016

DO - 10.1016/j.jalz.2018.05.016

M3 - Article

C2 - 30297140

AN - SCOPUS:85056325256

SN - 1552-5260

VL - 14

SP - 1397

EP - 1405

JO - Alzheimer's and Dementia

JF - Alzheimer's and Dementia

IS - 11

ER -

Participant satisfaction with dementia prevention research: Results from Home-Based Assessment trial

Abstract

Keywords

ASJC Scopus subject areas

Access to Document

Other files and links

Fingerprint

Cite this