TY - JOUR
T1 - Place of death of people living with Parkinson's disease
T2 - A population-level study in 11 countries
AU - Moens, Katrien
AU - Houttekier, Dirk
AU - Van Den Block, Lieve
AU - Harding, Richard
AU - Morin, Lucas
AU - Marchetti, Stefano
AU - Csikos, Agnes
AU - Loucka, Martin
AU - Naylor, Wayne A.
AU - Wilson, Donna M.
AU - Teno, Joan
AU - Cardenas-Turanzas, Marylou
AU - Rhee, Yong Joo
AU - Garcia-Leon, Francisco Javier
AU - Deliens, Luc
AU - Cohen, Joachim
N1 - Funding Information:
This study is a part of the International Place of Death (IPoD) study. This study is supported by a fund from the Research Foundation Flanders and is coordinated by Prof Joachim Cohen, Dr Dirk Houttekier, and Prof Luc Deliens of the End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB) & Ghent University, Brussels, Belgium. We acknowledge the following agencies for the delivery of the death certificate data: Belgium: Flemish agency for care and health, the Brussels health and social observatory and the French Community of Belgium France: Inserm-CépiDc (Centre d'épidémiologie sur les causes médicales de décès, Institut national de la santé et de la recherche médicale) Italy: Italian National Institute of Statistics (Unit for cause of death statistic) Netherlands: Statistics Netherlands (CBS) Spain (Andalusia): Instituto de Estadística y Cartografía de Andalucía Czech Republic: Institute of Health Information and Statistics of the Czech Republic (IHIS) Hungary: Central Statistical Office Hungary USA: Center for Disease Control and Prevention (CDC) Canada: Statistics Canada New Zealand: New Zealand Ministry of Health England and Wales: Office for National Statistics (ONS) Mexico: Sistema Nacional de Informacion en Salud (SINAIS) Korea: Statistics Korea. The analysis and writing of the paper were also made possible by the EURO IMPACT project (European Intersectorial and Multidisciplinary Palliative Care Research Training) funded by the European Union Seventh Framework Programme (FP7/2007-2013, under grant agreement n° [264697]). First author Katrien Moens is a fellow of EURO IMPACT. EURO IMPACT is coordinated by Prof Luc Deliens and Prof Lieve Van den Block (both authors of this manuscript). Other contributors of EuroImpact are Zeger De Groote, MSc (End-of-Life Care Research Group, Ghent University & Vrije Universiteit Brussel, advisory committee member); Sarah Brearley, MD, PhD (International Observatory on End-of-Life Care, Lancaster University, advisory committee member); Augusto Caraceni, MD, PhD (EAPC Research Network, Fondazione IRCCS Istituto Nazionale dei Tumori, advisory committee member); Anneke L Francke, PhD (VU University Medical Center, EMGO Institute for health and care research, advisory committee member); Irene J Higginson, MD, PhD (King’s College London, Cicely Saunders Institute, Cicely Saunders International, advisory committee member); Stein Kaasa, MD, PhD (Norwegian University of Science and Technology, advisory committee member); Karin Linden, MSc (Springer Science and Business Media, advisory committee member); Koen Pardon, PhD (End-of-Life Care Research Group, Ghent University & Vrije Universiteit Brussel, advisory committee member); Roeline Pasman, PhD (VU University Medical Center, EMGO Institute for health and care research, advisory committee member); Sophie Pautex, MD, PhD (EUGMS European Union Geriatric Medicine Society, advisory committee member); Sheila Payne, PhD (International Observatory on End-of-Life Care, Lancaster University, advisory committee member).
Funding Information:
This work was supported by EURO IMPACT (FP7/2007-2013, under grant agreement n° [264697]). JC and LVdB are supported by a postdoctoral grant from the Research Foundation Flanders, Belgium. Role of the sponsor: the funding source had no role in the design and conduct of the study, and no role in the collection, management, analysis, and interpretation of the data.
Publisher Copyright:
© 2015 Moens et al.
PY - 2015/5/20
Y1 - 2015/5/20
N2 - Background: Most people prefer to receive end-of-life care in familiar surroundings rather than in hospital. This study examines variation in place of death for people dying from Parkinson's disease (PD) across 11 European and non-European countries. Methods: Using death certificate data of 2008 for Belgium, France, Italy, Hungary, Czech Republic, New Zealand, USA, Canada, Mexico, South Korea and Spain for all deaths with PD as an underlying cause (ICD-10 code: G20) cross-national differences in place of death were examined. Associations between place of death and patient socio-demographic and regional characteristics were evaluated using multivariable binary logistic regression analyses. Results: The proportion of deaths in hospital ranged from 17% in the USA to 75% in South Korea. Hospital was the most prevalent place of death in France (40%), Hungary (60%) and South Korea; nursing home in New Zealand (71%), Belgium (52%), USA (50%), Canada (48%) and Czech Republic (44%); home in Mexico (73%), Italy (51%) and Spain (46%). The chances of dying in hospital were consistently higher for men (Belgium, France, Italy, USA, Canada), those younger than 80 years (Belgium, France, Italy, USA, Mexico), and those living in areas with a higher provision of hospital beds (Italy, USA). Conclusions: In several countries a substantial proportion of deaths from PD occurs in hospitals, although this may not be the most optimal place of terminal care and death. The wide variation between countries in the proportion of deaths from PD occurring in hospital indicates a potential for many countries to reduce these proportions.
AB - Background: Most people prefer to receive end-of-life care in familiar surroundings rather than in hospital. This study examines variation in place of death for people dying from Parkinson's disease (PD) across 11 European and non-European countries. Methods: Using death certificate data of 2008 for Belgium, France, Italy, Hungary, Czech Republic, New Zealand, USA, Canada, Mexico, South Korea and Spain for all deaths with PD as an underlying cause (ICD-10 code: G20) cross-national differences in place of death were examined. Associations between place of death and patient socio-demographic and regional characteristics were evaluated using multivariable binary logistic regression analyses. Results: The proportion of deaths in hospital ranged from 17% in the USA to 75% in South Korea. Hospital was the most prevalent place of death in France (40%), Hungary (60%) and South Korea; nursing home in New Zealand (71%), Belgium (52%), USA (50%), Canada (48%) and Czech Republic (44%); home in Mexico (73%), Italy (51%) and Spain (46%). The chances of dying in hospital were consistently higher for men (Belgium, France, Italy, USA, Canada), those younger than 80 years (Belgium, France, Italy, USA, Mexico), and those living in areas with a higher provision of hospital beds (Italy, USA). Conclusions: In several countries a substantial proportion of deaths from PD occurs in hospitals, although this may not be the most optimal place of terminal care and death. The wide variation between countries in the proportion of deaths from PD occurring in hospital indicates a potential for many countries to reduce these proportions.
KW - Cross-national comparison
KW - Palliative care
KW - Parkinson's disease
KW - Place of death
KW - Risk factors
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U2 - 10.1186/s12904-015-0021-3
DO - 10.1186/s12904-015-0021-3
M3 - Article
C2 - 25990567
AN - SCOPUS:84929774362
SN - 1472-684X
VL - 14
JO - BMC Palliative Care
JF - BMC Palliative Care
IS - 1
M1 - 28
ER -