Assessing content validity of the patient generated index using cognitive interviews

Susan S. Tavernier; Annette M. Totten; Susan L. Beck

doi:10.1177/1049732311420169

Assessing content validity of the patient generated index using cognitive interviews

Susan S. Tavernier, Annette M. Totten, Susan L. Beck

Medical Informatics and Clinical Epidemiology

Research output: Contribution to journal › Article › peer-review

11 Scopus citations

Abstract

The effects of cancer and its treatment on quality of life contribute to patient and clinician decisions. Health-related quality of life (HRQL) is a subjective concept, leading to variation in its definition. This presents challenges when measuring HRQL and evaluating interventions. The designers of the Patient Generated Index (PGI) addressed these challenges by having individuals identify areas of their lives affected by illness and treatment, then report on these self-defined areas. We used cognitive interviews to collect information about patient understanding of the PGI, the response processes used to complete the PGI, and how well the PGI reflected participant HRQL. Interview data support the content validity of the PGI in comprehensively defining and adequately sampling participant HRQL as an individualized construct. Findings also support our recommendation to revise PGI formatting to reduce response errors. We make recommendations to reduce the cognitive demands the PGI places on respondents.

Original language	English (US)
Pages (from-to)	1729-1738
Number of pages	10
Journal	Qualitative health research
Volume	21
Issue number	12
DOIs	https://doi.org/10.1177/1049732311420169
State	Published - Dec 2011

Keywords

cancer
instrument development
interviews
quality of life
validity

ASJC Scopus subject areas

Public Health, Environmental and Occupational Health

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10.1177/1049732311420169

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title = "Assessing content validity of the patient generated index using cognitive interviews",

abstract = "The effects of cancer and its treatment on quality of life contribute to patient and clinician decisions. Health-related quality of life (HRQL) is a subjective concept, leading to variation in its definition. This presents challenges when measuring HRQL and evaluating interventions. The designers of the Patient Generated Index (PGI) addressed these challenges by having individuals identify areas of their lives affected by illness and treatment, then report on these self-defined areas. We used cognitive interviews to collect information about patient understanding of the PGI, the response processes used to complete the PGI, and how well the PGI reflected participant HRQL. Interview data support the content validity of the PGI in comprehensively defining and adequately sampling participant HRQL as an individualized construct. Findings also support our recommendation to revise PGI formatting to reduce response errors. We make recommendations to reduce the cognitive demands the PGI places on respondents.",

keywords = "cancer, instrument development, interviews, quality of life, validity",

author = "Tavernier, {Susan S.} and Totten, {Annette M.} and Beck, {Susan L.}",

note = "Funding Information: The authors disclosed receipt of the following financial support for the research and/or authorship of this article: The first author received partial support for this study through National Cancer Institute training grant R25 CA093831; Sigma Theta Tau Mu Gamma Chapter; and the University of Utah George S. and Dolores Dor{\'e} Eccles Scholarship Fund.",

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AU - Beck, Susan L.

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PY - 2011/12

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Assessing content validity of the patient generated index using cognitive interviews

Abstract

Keywords

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