Abstract
The objective of this study was to assess the perceived oral health-related quality of life (OHQoL) of adolescents affected with one of the ectodermal dysplasias (EDs). Data were collected from 2003 to 2007 in a cross-sectional study of a convenience sample of individuals affected by ED (n = 35) using the Child Perceptions Questionnaire (CPQ11-14) for children and the Parent-Caregiver Perceptions Questionnaire for their caregivers. The main findings of this study were that individuals who were affected with ED in the older age group (15- to 19-year-olds) perceived more functional problems than younger individuals (11- to 14-year-olds) (p=.04). Females with ED (n = 13) perceived more emotional problems than males (n = 22; p=.01). Although caregivers tended to report slightly higher OHQoL scores (indicating worse OHQoL), no significant differences were observed between children's and parents' total OHQoL and individual domains' median scores (p >.05). Thus, the perceptions of oral health and well-being may vary by age and gender for children who have ED. Caution is warranted concerning using parents as proxies for their children when assessing the child's OHQoL.
Original language | English (US) |
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Pages (from-to) | 88-94 |
Number of pages | 7 |
Journal | Special Care in Dentistry |
Volume | 31 |
Issue number | 3 |
DOIs | |
State | Published - May 2011 |
Externally published | Yes |
Keywords
- children
- ectodermal dysplasias
- oral health-related quality of life
- parents
- perceptions
- teenagers
ASJC Scopus subject areas
- General Dentistry