Congestive heart failure self-management among US veterans: The role of personal and professional advocates

Eleni Skaperdas; Anaïs Tuepker; Christina Nicolaidis; Jessica K. Robb; Devan Kansagara; David H. Hickam

doi:10.1016/j.pec.2014.03.002

Congestive heart failure self-management among US veterans: The role of personal and professional advocates

Eleni Skaperdas, Anaïs Tuepker, Christina Nicolaidis, Jessica K. Robb, Devan Kansagara, David H. Hickam

Family Medicine

Research output: Contribution to journal › Article › peer-review

9 Scopus citations

Abstract

Objective: Understand patients' experiences with primary care services for congestive heart failure (CHF) and explore the relationship between health services and self-management. Methods: We conducted semi-structured interviews with thirty-nine patients with CHF receiving care at one Veterans Affairs Medical Center (VA). We analyzed data using thematic content analysis. Results: Participants acknowledged the importance of ongoing engagement in the plan of care for CHF. They attributed success in this effort to be greatly influenced by personal advocates. The advocates included both members of the healthcare team with whom they had a continuity relationship and friends or family members who assisted on a daily basis. Participants also identified psychological symptoms as a major barrier to carrying out self-care. Conclusion: Patients identify relationships with health care workers, help from family and friends, and mental health problems as major influences on the ability to manage their CHF. Practice implications: Efforts to optimize CHF self-management should attend to health system and psychosocial barriers to care.

Original language	English (US)
Pages (from-to)	371-377
Number of pages	7
Journal	Patient Education and Counseling
Volume	95
Issue number	3
DOIs	https://doi.org/10.1016/j.pec.2014.03.002
State	Published - Jun 2014

Keywords

Heart failure
Primary care redesign
Qualitative research
Self-management
US
Veterans

ASJC Scopus subject areas

Medicine(all)

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10.1016/j.pec.2014.03.002

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title = "Congestive heart failure self-management among US veterans: The role of personal and professional advocates",

abstract = "Objective: Understand patients' experiences with primary care services for congestive heart failure (CHF) and explore the relationship between health services and self-management. Methods: We conducted semi-structured interviews with thirty-nine patients with CHF receiving care at one Veterans Affairs Medical Center (VA). We analyzed data using thematic content analysis. Results: Participants acknowledged the importance of ongoing engagement in the plan of care for CHF. They attributed success in this effort to be greatly influenced by personal advocates. The advocates included both members of the healthcare team with whom they had a continuity relationship and friends or family members who assisted on a daily basis. Participants also identified psychological symptoms as a major barrier to carrying out self-care. Conclusion: Patients identify relationships with health care workers, help from family and friends, and mental health problems as major influences on the ability to manage their CHF. Practice implications: Efforts to optimize CHF self-management should attend to health system and psychosocial barriers to care.",

keywords = "Heart failure, Primary care redesign, Qualitative research, Self-management, US, Veterans",

author = "Eleni Skaperdas and Ana{\"i}s Tuepker and Christina Nicolaidis and Robb, {Jessica K.} and Devan Kansagara and Hickam, {David H.}",

note = "Funding Information: We thank the Veterans, their family members, and close friends for sharing their experiences, and gratefully acknowledge the contribution of all members of the VISN 20 PACT Demonstration Lab. Funding for the PACT Demonstration Laboratory initiative is provided by the VA Office of Patient Care.",

year = "2014",

month = jun,

doi = "10.1016/j.pec.2014.03.002",

language = "English (US)",

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T2 - The role of personal and professional advocates

AU - Skaperdas, Eleni

AU - Tuepker, Anaïs

AU - Nicolaidis, Christina

AU - Robb, Jessica K.

AU - Kansagara, Devan

AU - Hickam, David H.

N1 - Funding Information: We thank the Veterans, their family members, and close friends for sharing their experiences, and gratefully acknowledge the contribution of all members of the VISN 20 PACT Demonstration Lab. Funding for the PACT Demonstration Laboratory initiative is provided by the VA Office of Patient Care.

PY - 2014/6

Y1 - 2014/6

N2 - Objective: Understand patients' experiences with primary care services for congestive heart failure (CHF) and explore the relationship between health services and self-management. Methods: We conducted semi-structured interviews with thirty-nine patients with CHF receiving care at one Veterans Affairs Medical Center (VA). We analyzed data using thematic content analysis. Results: Participants acknowledged the importance of ongoing engagement in the plan of care for CHF. They attributed success in this effort to be greatly influenced by personal advocates. The advocates included both members of the healthcare team with whom they had a continuity relationship and friends or family members who assisted on a daily basis. Participants also identified psychological symptoms as a major barrier to carrying out self-care. Conclusion: Patients identify relationships with health care workers, help from family and friends, and mental health problems as major influences on the ability to manage their CHF. Practice implications: Efforts to optimize CHF self-management should attend to health system and psychosocial barriers to care.

AB - Objective: Understand patients' experiences with primary care services for congestive heart failure (CHF) and explore the relationship between health services and self-management. Methods: We conducted semi-structured interviews with thirty-nine patients with CHF receiving care at one Veterans Affairs Medical Center (VA). We analyzed data using thematic content analysis. Results: Participants acknowledged the importance of ongoing engagement in the plan of care for CHF. They attributed success in this effort to be greatly influenced by personal advocates. The advocates included both members of the healthcare team with whom they had a continuity relationship and friends or family members who assisted on a daily basis. Participants also identified psychological symptoms as a major barrier to carrying out self-care. Conclusion: Patients identify relationships with health care workers, help from family and friends, and mental health problems as major influences on the ability to manage their CHF. Practice implications: Efforts to optimize CHF self-management should attend to health system and psychosocial barriers to care.

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KW - Qualitative research

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Congestive heart failure self-management among US veterans: The role of personal and professional advocates

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