TY - JOUR
T1 - Experiences of Homeless Recipients of Social Model Hospice Care
T2 - A Photovoice Exploration
AU - Jensen, Francine Bench
AU - Supiano, Katherine P.
AU - Towsley, Gail L.
AU - Ellington, Lee
AU - Cloyes, Kristin G.
N1 - Publisher Copyright:
© Lippincott Williams & Wilkins.
PY - 2023/10/1
Y1 - 2023/10/1
N2 - Homelessness and caregiver insecurity are barriers to accessing hospice for end-of-life care. Some communities have implemented a community-based social model of hospice care, and reports of its characteristics and outcomes are growing in hospice and homeless literature. This case report explored the experiences of social model hospice recipients using photovoice, a community-based participatory method to photograph meaningful aspects of care. Participants (n = 3) took photos (n = 93), journaled, and participated in semistructured interviews as co-analyzers. Through deductive codes from the literature and inductive analysis of data, 6 themes were identified: having a physical location to receive care, involving the community, having spiritual needs attended to, acknowledging family/family of choice, connecting with animals, and feeling cared for. Participants offered few suggestions to improve care. Social model hospice provided a location for care, funding, and social support to address housing and caregiver insecurity. Results corroborated the social model hospice concept (antecedents, attributes, consequences). Findings add to the growing literature with implications for communities and leaders looking to start or improve care. Results suggest that photovoice may be a feasible method for eliciting firsthand experiences of residents. Findings may guide discussions about patient-reported aspects of care for a more accurate understanding of meaningful social model hospice care.
AB - Homelessness and caregiver insecurity are barriers to accessing hospice for end-of-life care. Some communities have implemented a community-based social model of hospice care, and reports of its characteristics and outcomes are growing in hospice and homeless literature. This case report explored the experiences of social model hospice recipients using photovoice, a community-based participatory method to photograph meaningful aspects of care. Participants (n = 3) took photos (n = 93), journaled, and participated in semistructured interviews as co-analyzers. Through deductive codes from the literature and inductive analysis of data, 6 themes were identified: having a physical location to receive care, involving the community, having spiritual needs attended to, acknowledging family/family of choice, connecting with animals, and feeling cared for. Participants offered few suggestions to improve care. Social model hospice provided a location for care, funding, and social support to address housing and caregiver insecurity. Results corroborated the social model hospice concept (antecedents, attributes, consequences). Findings add to the growing literature with implications for communities and leaders looking to start or improve care. Results suggest that photovoice may be a feasible method for eliciting firsthand experiences of residents. Findings may guide discussions about patient-reported aspects of care for a more accurate understanding of meaningful social model hospice care.
KW - end of life
KW - homeless
KW - homelessness
KW - hospice
KW - social model hospice
KW - social model hospice care
UR - http://www.scopus.com/inward/record.url?scp=85170581670&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85170581670&partnerID=8YFLogxK
U2 - 10.1097/NJH.0000000000000963
DO - 10.1097/NJH.0000000000000963
M3 - Article
C2 - 37487049
AN - SCOPUS:85170581670
SN - 1522-2179
VL - 25
SP - E71-E84
JO - Journal of Hospice and Palliative Nursing
JF - Journal of Hospice and Palliative Nursing
IS - 5
ER -