TY - JOUR
T1 - Health Experiences Research as a Resource and Mechanism for Veteran Engagement in VA Healthcare Research and Care Delivery
AU - Nugent, Shannon M.
AU - Cottrell, Erika
AU - Knight, Sara J.
AU - Helfand, Mark
N1 - Funding Information:
We would like to thank Mark Flower, Carolyn Ray, and the other members of the Veteran Engagement Workgroup, Subgroup 2: Health Experiences Research.
Funding Information:
This study was supported by the VA Health Services Research and Development (SDR-17-151). The project was also supported by the National Center for Advancing Translational Sciences (NCATS), National Institutes of Health, through Grant Award Number UL1TR002369.
Publisher Copyright:
© 2021, The Author(s).
PY - 2022/4
Y1 - 2022/4
N2 - Engaging patients in the research process helps to ensure researchers ask meaningful questions and generate useful evidence to inform healthcare decisions. In 2015, the Veterans Health Administration (VA) Health Services Research & Development (HSR&D) service convened a Veteran engagement workgroup, comprised of researchers, clinicians, and Veterans, to identify ways to integrate Veteran engagement into HSR&D. A subgroup was designated to explore the utility of health experiences research (research focused on enhancing understanding of people’s experiences with healthcare and illnesses) as a mechanism to complement and broaden traditional engagement mechanisms. The subgroup recommended the VA adopt the Database of Individual Patient Experiences (DIPEx) methodology for conducting and disseminating health experiences research (HER). In this paper, we describe (1) the key components of the DIPEx approach, (2) how these components complement and broaden current methods of Veteran engagement, (3) an update on VA activities using the DIPEx approach, and (4) a roadmap for future VA HER activities.
AB - Engaging patients in the research process helps to ensure researchers ask meaningful questions and generate useful evidence to inform healthcare decisions. In 2015, the Veterans Health Administration (VA) Health Services Research & Development (HSR&D) service convened a Veteran engagement workgroup, comprised of researchers, clinicians, and Veterans, to identify ways to integrate Veteran engagement into HSR&D. A subgroup was designated to explore the utility of health experiences research (research focused on enhancing understanding of people’s experiences with healthcare and illnesses) as a mechanism to complement and broaden traditional engagement mechanisms. The subgroup recommended the VA adopt the Database of Individual Patient Experiences (DIPEx) methodology for conducting and disseminating health experiences research (HER). In this paper, we describe (1) the key components of the DIPEx approach, (2) how these components complement and broaden current methods of Veteran engagement, (3) an update on VA activities using the DIPEx approach, and (4) a roadmap for future VA HER activities.
KW - Veteran engagement
KW - health experiences research
KW - qualitative research
UR - http://www.scopus.com/inward/record.url?scp=85127362063&partnerID=8YFLogxK
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U2 - 10.1007/s11606-021-07306-2
DO - 10.1007/s11606-021-07306-2
M3 - Comment/debate
C2 - 35349029
AN - SCOPUS:85127362063
SN - 0884-8734
VL - 37
SP - 118
EP - 122
JO - Journal of general internal medicine
JF - Journal of general internal medicine
ER -