Long-term pediatrician outcomes of a parent led curriculum in developmental disabilities

Bruce L. Keisling, Elizabeth A. Bishop, David A. Kube, Jenness M. Roth, Frederick B. Palmer

Research output: Contribution to journalArticlepeer-review

10 Scopus citations


Previous research has demonstrated high satisfaction and perceived relevance of Project DOCC (Delivery of Chronic Care), a parent led curriculum in developmental disabilities, across a sample of medical residents. Aims The influence of such a training program on the clinical practices and professional activities of these residents once they are established in their careers as physicians, however, has not been studied; this was the aim of the present study. Methods An anonymous follow-up survey was designed and disseminated to physicians who participated in Project DOCC during their one-month developmental disabilities rotation as part of their pediatrics or medicine/pediatric residency between 2002 and 2010. Fifty-eight physicians completed the survey. Results The findings suggest that participation in a parent led curriculum during medical residency had a lasting impact on physicians' relationships with families. Specifically, a majority of the physicians espoused a family-centered approach to care, a sensitivity to the interactional effect that caring for a Child with Special Health Care Needs (CSHCN) has on family members, the need for physicians to have a prominent role in community resource coordination, and the importance of an integrated approach to health care provision. Conclusions Use of a parent led curriculum as a means to increase the provision of family-centered care by physicians is supported.

Original languageEnglish (US)
Pages (from-to)16-23
Number of pages8
JournalResearch in Developmental Disabilities
StatePublished - Jan 1 2017
Externally publishedYes


  • Developmental disability
  • Family-centered care
  • Medical curriculum
  • Parent advocacy
  • Pediatrician
  • Resident education

ASJC Scopus subject areas

  • Developmental and Educational Psychology
  • Clinical Psychology


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