Strategies used by teens growing up in families with huntington disease

Janet K. Williams, Martha Driessnack, J. Jackson Barnette, Kathleen J.H. Sparbel, Anne Leserman, Sean Thompson, Jane S. Paulsen

Research output: Contribution to journalArticlepeer-review

10 Scopus citations


The purpose of this study was to identify helpfulness of strategies used by teens growing up in families with Huntington disease (HD). Forty-four participants responded to a mailed HD Family Survey-Teens Strategies. Strategies were those with strong positive correlation between use and perceived helpfulness, and those with negative or inverse relationships. Obtaining information, thinking about or doing something else, and actions on behalf of the parent with HD were rated as highest use and perceived helpfulness. Emotional suppression had high use but low helpfulness. Participants reported using numerous helpful strategies. Social support was often unavailable to help manage teen concerns.

Original languageEnglish (US)
Pages (from-to)464-469
Number of pages6
JournalJournal of pediatric nursing
Issue number5
StatePublished - Sep 2013
Externally publishedYes


  • Adolescence
  • Coping
  • Family
  • Huntington disease
  • Young adult

ASJC Scopus subject areas

  • Pediatrics


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