The concept of quality of life of dying persons in the context of health care

Anita L. Stewart, Joan Teno, Donald L. Patrick, Joanne Lynn

Research output: Contribution to journalArticlepeer-review

94 Scopus citations


Considerable research has addressed quality of life and quality of care; however, it has not addressed adequately the experiences of patients and their families at the end of life. Health care may have a greater effect on quality of life during the dying process than it normally does. Building on research and expert review, a conceptual framework is presented that specifies and integrates quality of life and quality of health care indicators. Five main concepts include patient/family context, structure of care, process of care, satisfaction with care, and quality and length of life. Patient and family perspectives are considered. The framework emphasizes quality of life, thus detailed definitions of each quality of life domain are provided. The goal is to facilitate development of a comprehensive set of measures to describe the quality of life of dying persons and evaluate the care they receive, to be used to improve end-of-life care.

Original languageEnglish (US)
Pages (from-to)93-108
Number of pages16
JournalJournal of Pain and Symptom Management
Issue number2
StatePublished - Feb 1999
Externally publishedYes


  • Death
  • Health care
  • Health status indicators
  • Outcome assessment
  • Palliative care
  • Patient satisfaction
  • Quality assurance
  • Quality of care
  • Quality of life
  • Terminal care

ASJC Scopus subject areas

  • Nursing(all)
  • Clinical Neurology
  • Anesthesiology and Pain Medicine


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