The impact of childhood glaucoma on psychosocial functioning and quality of life: a review of the literature

Danielle E. McLaughlin; Ana Semrov; Hounsh Munshi; Annika J. Patel; Jugnoo Rahi; Alana L. Grajewski; Elena Bitrian; James D. Brandt; Ta Chen Chang; Tanuj Dada; Alan Delamater; Beth Edmunds; Sharon F. Freedman; Elizabeth Hodapp; Youngmee Kim

doi:10.1038/s41433-023-02492-1

The impact of childhood glaucoma on psychosocial functioning and quality of life: a review of the literature

Danielle E. McLaughlin, Ana Semrov, Hounsh Munshi, Annika J. Patel, Jugnoo Rahi, Alana L. Grajewski, Elena Bitrian, James D. Brandt, Ta Chen Chang, Tanuj Dada, Alan Delamater, Beth Edmunds, Sharon F. Freedman, Elizabeth Hodapp, Youngmee Kim

Ophthalmology

Research output: Contribution to journal › Review article › peer-review

1 Scopus citations

Abstract

We present a novel comprehensive literature review of studies of the psychosocial functioning (PF) and quality of life (QoL) of patients with childhood glaucoma and their caregivers. Our findings demonstrate variable study quality and approach, as well as inconsistent results relating to the association of glaucoma-specific factors and sociodemographic variables with measured PF and QoL. Future studies should focus on the development of culturally cognizant and standardized assessment tools, execution of multi-center longitudinal studies with global representation, evaluation of PF and QoL among siblings and childhood glaucoma providers, and implementation of interventions to improve patient and caregiver PF and QoL.

Original language	English (US)
Pages (from-to)	3157-3173
Number of pages	17
Journal	Eye (Basingstoke)
Volume	37
Issue number	15
DOIs	https://doi.org/10.1038/s41433-023-02492-1
State	Published - Oct 2023

ASJC Scopus subject areas

Ophthalmology
Sensory Systems

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McLaughlin, D. E., Semrov, A., Munshi, H., Patel, A. J., Rahi, J., Grajewski, A. L., Bitrian, E., Brandt, J. D., Chang, T. C., Dada, T., Delamater, A., Edmunds, B., Freedman, S. F., Hodapp, E., & Kim, Y. (2023). The impact of childhood glaucoma on psychosocial functioning and quality of life: a review of the literature. Eye (Basingstoke), 37(15), 3157-3173. https://doi.org/10.1038/s41433-023-02492-1

McLaughlin, DE, Semrov, A, Munshi, H, Patel, AJ, Rahi, J, Grajewski, AL, Bitrian, E, Brandt, JD, Chang, TC, Dada, T, Delamater, A, Edmunds, B, Freedman, SF, Hodapp, E & Kim, Y 2023, 'The impact of childhood glaucoma on psychosocial functioning and quality of life: a review of the literature', Eye (Basingstoke), vol. 37, no. 15, pp. 3157-3173. https://doi.org/10.1038/s41433-023-02492-1

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abstract = "We present a novel comprehensive literature review of studies of the psychosocial functioning (PF) and quality of life (QoL) of patients with childhood glaucoma and their caregivers. Our findings demonstrate variable study quality and approach, as well as inconsistent results relating to the association of glaucoma-specific factors and sociodemographic variables with measured PF and QoL. Future studies should focus on the development of culturally cognizant and standardized assessment tools, execution of multi-center longitudinal studies with global representation, evaluation of PF and QoL among siblings and childhood glaucoma providers, and implementation of interventions to improve patient and caregiver PF and QoL.",

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AU - Brandt, James D.

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AU - Dada, Tanuj

AU - Delamater, Alan

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The impact of childhood glaucoma on psychosocial functioning and quality of life: a review of the literature

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